JOIN US AT HALF-TIME TO #STANDUPFOREB
Epidermolysis Bullosa, or EB for short, is a brutal and life threatening genetic skin disorder that affects kids from birth. Being diagnosed with a rare disease like Epidermolysis Bullosa (EB) can be isolating and challenging to say the least.
Children with EB are often called ‘butterfly children’ because their skin is as fragile as the wings of a butterfly. With skin this fragile, everyday activities that many take for granted like eating, sleeping, and even standing up to walk can become monumental tasks.
To show our solidarity and support for those battling EB, we are inviting everyone to #StandUpforEB. By standing up together, we can demonstrate that actions, big and small, can create GIANT change.
HOW TO PARTICIPATE
- Look out for the #StandUpforEB video on the big screen at ENGIE during half-time
- Get your phone out and be ready to record!
- Follow the instructions from our on-field MC and stand up on the count of three
- Post on social using #StandUpforEB, @gwsgiants and @ebresearch so we can show support for all those battling EB
This is more than a social post - it's a powerful statement of unity and support for the EB community. Join us at half-time to be a part of the GIANTS community as we #StandUpForEB!
